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Face of Rare., Nephrotic Syndrome, This is RARE. -

"Although the tears are much less these days, the fear, and anxiety I hold will never go away."

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Face of Rare., This is RARE. -

"I was SCARED. Once they finished, the anticipation of waiting was killing me. "

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Face of Rare., This is RARE. -

You know your body , if you feel like something is wrong keep pushing , go to as many doctors as you need to until someone helps!”

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Face of Rare., This is RARE. -

Where to begin on a journey that never ends. You become a mother with hope, love and wonder for this beautiful child you bring into the world. You go through life thinking I am the luckiest person in the world. My kids are healthy, happy and loved. Then you wake up 28 years later to a different reality.

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Face of Rare., This is RARE. -

"So after 19 years of being misdiagnosed and overlooked by medical professionals, I am hoping to be heard.  My endo makes it look like IC, like IBS, like PMDD, but it’s not."

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