A Mother's Love

Face of Rare., This is RARE. -

A Mother's Love

Where to begin on a journey that never ends. You become a mother with hope, love and wonder for this beautiful child you bring into the world. You go through life thinking I am the luckiest person in the world. My kids are healthy, happy and loved. Then you wake up 28 years later to a different reality. A reality you don't control or understand and the beautiful child you created is a quarter of who she was. No one can help her no medicine no doctor not her mom. Not the person who she was entrusted to by god. So you feel helpless and weak and frightened for this baby you brought into this world. Cause as all mothers know their children are always these little babies. You look at them and all you see is the child they used to be. So you are stuck in a nightmare that you have no control over. You cry daily for her, pray every time you have a moment that some miracle will happen and she will feel human again, so that you can feel human again. So the struggle continues for a mother ,who like most mothers sits by and waits to see what the outcome of this disease will bring. You try to keep it together for the family you adore, the life you brought into this world and what the outcome will look like in the end. The one thing you know for sure is you are changed forever. Your daughter is changed, the other members of your family are changed. Your only hope in life is that your child feels better again,all your dreams and your future depends totally on the outcome of this disease and what it does to the first love of your life.

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