Meet Micah & his amazing advocates (his parents).

Nephrotic Syndrome, This is RARE. -

Meet Micah & his amazing advocates (his parents).

Micah is a special kid! He was diagnosed when he was 3 in 2016 with nephrotic syndrome. He did a long course of steroids, and finally got to wean and has been in remission for 18 months currently! There is no cure, only these treatments that weren’t even created as treatment for this disease. This year I’m volunteering with Nephcure to raise funds, awareness and raise the awareness about tons of clinical trials that are happening right now to find a treatment specifically geared towards this disease. Micah is one of the strongest kids I know! He can do a blood draw without even a flinch. He started kindergarten this year and they wanted to skip on to 1st but he isn’t emotionally ready for that. His first hospital stay, he actually didn’t want to leave the hospital! He loves emergency vehicles, police officers, and firefighters! He plays hard and managers to keep up with a few chores around the house to earn $1’s each week. He is the strongest, smartest child I’ve ever met, and I’m not just saying that because he is my child. He’s been through a lot and I’m just praying for an easier future for him with his disease. He was introduced to medicine at a younger age and we know he is destined to do big things in this world! 

Leave a comment