Finding RARE.

It is only when faced with the unthinkable that incredible things can happen.  The story of RARE. is far from simple, similar to the stories of fellow fighters of rare disorders.  RARE. did not just happen, it was a process borne from the frustrations of living with a rare and painful disease.  RARE. is about reconstructing a life and identity of our choosing.  

Welcome to RARE. - this is our movement. Our mission is to spread awareness and give a voice to the voiceless.  RARE. is more than just rare diseases, it is about living your most RARE., authentic, and honest life where you are and who you are.  Most of all, we want to give a voice to all those who are suffering, often in silence, and to let them know they are not alone.  

The RARE. Collection strives to bring awareness to the over 7,000 rare diseases that more 30 million people in the United States suffer from.  By sharing our stories, we hope to de-stigmatize what sick looks like. Everyone fights a battle you know nothing about so stand with people, be kind, be open-minded…. Be RARE.

Learn more about our RARE. Movement and help spread the truth about rare diseases.  

Read our news/blog which includes information, support, and advice about rare diseases on our RARE. Perspectives page.

And most importantly, share your story at Faces of RARE.  Sometimes all it takes is not feeling alone in the fight to keep going.  

15% of every purchase from the RARE. collection will go to the research and awareness of Rare Diseases.