Our Story

Kristine standing outside running her hand through her hair wearing a black long sleeve "this is rare" tshirt to the right of that image are the words Rare. The movement


The mission of RARE. is to make the invisible, visible. Each product is designed to create conversations and awareness surrounding rare disease, chronic illness, and the people who battle them every day.

Model sitting on couch reading a book in a greater than rare t-shirt

Every item at RARE. is designed to make a difference and impact the future of what rare diseases look like, one product at a time.

Kristine Hoestermann CEO of Find Your Rare


RARE. was founded in 2019 when our CEO, Kristine, was struggling to find purpose as a newly diagnosed rare disease patient. What started out as a passion project, turned into a movement. Not only is RARE. a brand, it is also a huge community of rare disease/chronic illness patients and their allies. With over 15,000 followers on social media, RARE. is well on its way to smashing the stigma surrounding rare disease and chronic illness.
Since starting up, RARE. has put on multiple Rare Disease Day fundraisers and created hundreds of pieces that bring awareness to specific conditions. 15% of every purchase goes to a foundation of your choice (from a list of many wonderful groups). Each piece you purchase has a story and helps bridge the gap between rare disease and the rest of the world.

Thank you to all of the amazing humans who have worked with RARE. supported RARE. & believed in RARE. We are forever grateful.

Shop With A Purpose