Awareness is 365

Awareness Is 365: Because Every Zebra Has a Story 🦓💙

At RARE., we believe awareness doesn’t begin or end with a single day. Advocacy is a daily commitment—a chance to make invisible struggles visible and amplify the voices of our incredible community. That’s why we created the Awareness Is 365 calendar: to celebrate and honor every story, every condition, and every step of the journey every single day.

This isn’t just a calendar; it’s a movement. A reminder that awareness isn’t limited to a calendar date—it’s woven into our lives, our resilience, and our shared mission to make the world see what often goes unseen.

How You Can Join the Movement:

🙌 Contribute Your RARE.

Your voice matters. Share your condition, awareness color, and month to be included in our Awareness Is 365 Calendar. This project ensures every condition is represented and no zebra is left out.

📣 Spread the Word

Advocacy grows when we share it. Post, tag, and share your story using #AwarenessIs365 to inspire and educate others. Let’s make rare and invisible visible.

Why Awareness Is 365 Matters:

This calendar isn’t just about recognition but belonging, empowerment, and action. By participating, you’re helping to:

• 🦓 Shine a light on underrepresented conditions.
• 🦓 Build solidarity in The Herd and beyond.
• 🦓 Drive meaningful change and increase funding for rare disease research.

Key Dates to Remember:

➡️ Now – January 31: Submit your story to be featured in Version 1 of our Awareness Is 365 Calendar, launching on Rare Disease Day (February 28). Calendars will be available for presale starting February 2025.

➡️ February & Beyond: Stay tuned for the next wave of submissions to make this calendar even more inclusive.

Together, we can make 365 days of impact for the rare disease community. Ready to take action and ensure your story is seen and heard?

Let’s grow awareness today and every day. 💙 Because every zebra has a story. 🦓