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Jerry Williams & MSU
"Just because I can do something today doesn’t mean that I am cured or even feeling well, or that I will be able to do the same thing tomorrow. I often look “healthy” outside of my assistive devices, but inside I am hurting and my muscles are very weak."
An Endo Journey Guest Blog By Josie Cummings
blog · endo · endo awareness · guest blog · josie · pain ·
An Endo Journey Guest Blog By Josie Cummings
"Yes I am still sick, yes I have hard days, and yes I am still fighting but you gotta keep getting up and killing everyday no matter now much you might want to quit. Keep going "
2020 A Very RARE. Year
2020 A Very RARE. Year
"There were so many times that we talked about throwing in the towel. Where we just weren’t sure if we could hold our heads above water anymore. So many times we felt defeated. Beat down. Even held down, despite some of our hardest efforts to accomplish what we set out to do. "
September Awareness
September Awareness
Were mixing it up a little bit and really want to start highlighting some amazing causes and awareness topics every month. The month of September we want to recognize four causes that we feel are incredibly important. Each month houses...
What The Fork Is A Spoonie?
What The Fork Is A Spoonie?
The Spoon Theory by Christine Miserandino www.butyoudontlooksick.com   "My best friend and I were in the diner, talking. As usual, it was very late and we were eating French fries with gravy. Like normal girls our age, we spent a...
A RARE. Education
A RARE. Education
"Each week, we’ll take a deep dive into topics such as creating structure, keeping consistency, task management, intrinsic based incentive systems, and social-emotional development. Each episode will arm you with the information you need to implement a system that works for you and your family. You’ll also get the chance to hear from guests who are teachers, counselors, speech pathologists, and occupational therapists. I hand-selected these guests because I know they will provide you with the answers you’re looking for when it comes to remote learning and student services."
Made For This.
Made For This.
"Always fast to give love and take away from what it meant to be me; this rare life wasn’t a death sentence you see it was allowed me to be set free and see the human I could be."
Dancing on the moutain tops
Sidelined
"Where I am right now is the result of the terminal tackle that sidelined me. Only a little more than a year ago, at seventeen, my entire life fell to pieces. Without warning in months, everything I had worked for ripped away from me, it was like watching a bomb explode in slow motion, and nobody in my life could do anything but watch."
Where is your heart?
Where is your heart?
Dedicated to those who stoke my fire - Thank you for continuing to remind me everyday why what I am doing is so important. Thank you for being my motivation -Mom of a mountain mover Something that I find incredibly...
5 RARE. Products To Step Up Your Summer Game
5 RARE. Products To Step Up Your Summer Game
"So whether you are someone who dresses up, dresses down, or puts comfort above all else we have one of everything that will work for you"
Ten Things You Didn't Know about the Brand
Ten Things You Didn't Know about the Brand
"We realized, however, that there are so many unique parts of RARE. that you probably did know. RARE. has meaning and intention throughout the RARE. and today, we wanted to let you in on ten things you may not know about our brand."
Will you I ever be enough?
Will you I ever be enough?
"You already are..." Greater than hate, greater than your setbacks, greater than the judgments. You are enough.
Leave YOUR Mark
Leave YOUR Mark
"At some point, everyone goes through a crossroads in their life. It’s at that time that you have to decide how you are going to handle it. Will you succumb to the sadness of losing things about yourself that you loved so dearly? Or will you try and make the most of your situation and leave a mark or imprint in the hearts and lives of others?"
A RARE. Herd - A community I never knew I needed.
A RARE. Herd - A community I never knew I needed.
"This is a place to celebrate what makes you rare and share it with the world. This is our story. We embrace what makes us different and the challenges we overcome every day."
You Should Go & Love Yourself
"Let's get something straight. There is a major difference between loving yourself and being IN LOVE with yourself."
When Planning Fails
When Planning Fails
“For those of you who are struggling with where you are, just remember that every experience you have in life helps get you to where you need to be. We are not always meant to have control. Which is the WORST! I struggle with that so much, but the moment you accept you don’t have control is when you actually do…”    
In Every Language No means No
In Every Language No means No

Scar, - n. a mark left on the skin; a lasting effect of grief, fear, or other emotion left on a person's character by - a traumatic experience.

The Struggle to Move on
break up · find your rare · ownit · rare disease · share your rare · silence · story · struggle · the new me · this is rare ·
The Struggle to Move On.

"It beens 4 years since you left, I still struggle to know who I am. I don't know where I'm going but I know it's time to go. Forever a piece of me will always be with you. I can't hide anymore I need to tell our story, I need to let you go." 

Autism - The Perfect Puzzle Piece
Autism - The Perfect Puzzle Piece

"They are exhausting. They are challenging, and honestly, they make you question if you know what the hell you're doing. I wouldn’t even say the meltdowns are the worst part. The worst part is people's reactions. People who have no idea your child isn’t throwing a fit because their a typical two-year-old, rather, they are completely melting down because they cannot regulate the input of stimulus they are receiving. They have no control over their outbursts."

A Mom's Journey with Medical Marijuana
A Mom's Journey with Medical Marijuana
"You would never judge someone who is on antidepressants, or who takes prescription medications for pain. So before you judge someone for using marijuana do the research. Look into the benefits vs the risks. Educate yourself! You will be surprised at what you discover!"
Finding RARE.
Finding RARE.
"I wish I could say that in the four years since my onset I sit here having gone through all the stages of grief all the way through acceptance to gratitude, but that's not my story."