Finding RARE.

Since the onset of my symptoms in 2016 I have struggled to fit my rare into a box, I like things in separate containers (despite functionality) it keeps things neat, organized, everything has a place and most importantly it is predictable because it can be planned for. However, my RARE. has led me far away from anything I had planned into a world of unknown. I wish I could say that in the four years since my onset I sit here having gone through all the stages of grief all the way through acceptance to gratitude, but that's not my story.

Leave a comment