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Six Years Of Fighting, Creating, And Advocating—This Is RARE.
Blog · Creating RARE. · Find Your RARE. ·
Six Years Of Fighting, Creating, And Advocating—This Is RARE.

Six years ago, before I fully understood what was happening, my journey toward creating RARE. had already begun. I could say I navigated each stage of acceptance, found peace, and embraced my new reality, but that's not my story.

Why I Call Our Community ‘The Herd’: The Power of Connection
blog · rare herd · the herd ·
Why I Call Our Community ‘The Herd’: The Power of Connection
Living with a rare disease doesn’t just impact your body; it weaves a complex emotional web that’s hard to untangle. Yet, amid all that, I found something extraordinary: the power of community.