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Six Years Of Fighting, Creating, And Advocating—This Is RARE.

Six years ago, before I fully understood what was happening, my journey toward creating RARE. had already begun. I could say I navigated each stage of acceptance, found peace, and embraced my new reality, but that's not my story.

Made For This.
Always fast to give love and take away from what it meant to be me; this rare life wasn’t a death sentence, it allowed me to be set free and see the human I could be.